In case you're wondering, the title of my blog is CLEARLY the first phrase of the Jeopardy theme song.
Still no pathology report on the whole kidney thing. I called today and was informed that there is a shortage of pathologists and that the specimens can take a long time to examine.
They HOPE to have them before my next scheduled appointment with my surgeon, on March 31st.
Hi Kristie, I googled angiomyolipoma and came across your page. Around the time you found out that you had angiomyolipoma, it was around the time I found out as well. By the time I found out, it was too late. The benign tumor was grown too big for them to remove it. My doctor at first wasn't too worried about it. He scheduled me in for an ultrasound. I decided to take the test because I knew that there was something wrong with me. I couldn't walk, I couldn't eat, I was sweating through the nights, and was experiencing horrible abdominal pain. My doctor recommended me to get an ultrasound done as well. After I got my ultrasound done, they said they saw something but wouldn't tell me what it was for legal reasons. I called my doctor, and asked if he could call them right away and find out my results for me. My doctor told me that they found something on my liver and recommended me to get a CT scan done. I made an appointment and for whatever reason, they wanted my insurances approval. I was so angry at that time and scared that I decided to go to the hospital to get a scan done. Of course, before they allowed me to get a scan they wanted to ask me a lot of questions. They asked me questions like they did not believe what I was saying because I freshly turned 23, and was too "young" to have anything happen. When they took my heart rate, it was sky rocketing. The machine was going off, it was shooting 120bpm.I laid in the hospital for two weeks, most of the time confused on what was wrong with me. I was thinking that I had liver problems. They took awhile to find out what was wrong with me, they drew my blood 9 times a night, people were worried, but in the end; my surgeon came into my hospital room and told me I had angiomyolipoma and was going to have to undergo surgery. He told me he would try to remove the mass and save my kidney. After surgery I found out that they weren't able to save my kidney but he explained that I can function with one.
ReplyDeleteAll in all, I just wanted to leave you this comment that I know what you're going through. I feel lonely since my friends couldn't relate to what I was going through and was seeking google for some answers or people who experienced what i went through. I am so happy to have been able to read your posts. I'm still taking some pain medication because I still feel pain from the surgery that i had in mid september 2010. I know everything will be alright but I'm so scared of it happening again. Especially, since there is no real answer of what I can do to make sure that angiomyolipoma doesn't happen again. Thanks for talking about this on your blog.
-Wendy